Monday, April 26, 2010

BAS Treble Choir Performs at SDA General Conference

The BAS students in 3rd through 5th grade were asked to be in the SDA General Conference by 7:45 this morning. They performed several songs for the 8:00 morning worship.


The stage and auditorium enhanced the kids already happy-sounding voices as they sang along to a pre-recorded accompaniment. I suppose the 45-minute difference to the normal 8:30 morning school start was a bit difficult for some. About a dozen different kids trickled in during the first couple of songs. (We only had a 5 minute drive). You also could see kids yawning and rubbing their eyes. A couple of kids had to come off the stage to be treated for low blood sugar.

Here is the first song they sang, 'I Wanna Be Just Like Jesus'



All in all, the songs were great, and the kids did a wonderful job!

Sunday, April 25, 2010

Mom's Birthday

Mom's birthday is tomorrow, and since the kids will be in school, we all (Beryl, Darrell & family, Kenton & me and kids, Uncle Ben and Auntie Fraulein) met halfway in Fredericksburg to celebrate. There is a restaurant there that has dishes from several different Asian countries - Thailand, Philippines, Vietnam, China, etc. The food is delicious and the portions are generous, especially the kids meals.

Here is Mom with her special birthday dessert (compliments of the restaurant), surrounded by all her grandkids.

Outside the restaurant, Kenton and I take pictures of the group. Happy Birthday Mom/Grammie! We love you!!

One-Month Anniversary of Dad's Death

It's been a month since Dad died. I can't believe that a month has already passed. It seems like it was yesterday when Dad died, yet it seems like time has gone by so slow. Is that possible?

This weekend is the first time we've been back to Tappahannock since after the funeral. Two weeks were spent in the hospital, then the next few days were spent catching up on sleep, and just trying to get back into the normal routine of life.

We went to see Dad's gravesite today. There is just a marker where his grave is for now. We have yet to order a gravestone.

All the flowers from the funeral were still on stands, and strewn over the new grave. We cleared them away because they had all faded and died. We had brought a dozen fresh tulips and rigged them into a basket and stand.

It really is still hard to believe that Dad's body is there in the ground. The ground is so cold, and Dad didn't like being cold. I still think that Dad will be at home in one of the rooms.
Dad's grave is located in Essex Cemetary, which is at the entrance to downtown Tappahannock. It is on the main road of town, which makes it easy and convenient to visit. We drive right past it on the way in and out of Tappahannock. We plan to visit regularly.

Friday, April 23, 2010

A Different Kind of Grandparents Day

Today was Grandparents Day at school for Kevin and Justin. Dad and Mom have attended BAS Grandparents Day the last three years, but Mom didn't feel ready to go it alone. I spoke with Kevin and Justin's teachers, and they understood. Kenton and I decided to do something different for Grandparents Day with the family.

We took all three boys, along with Mom, Uncle Ben & Auntie Fraulein, and went downtown to see if we could find any cherry blossoms (Uncle Ben & Auntie Fraulein returned from California to keep Mom company for a couple of months). Of course, there weren't any cherry blossoms left, but we walked around the Tidal Basin and visited the Jefferson Memorial.

Mom with the grandkids and Thomas Jefferson. -- Kenton & I, the boys, and statue.












Kenton and the boys took a paddle boat ride in the Tidal Basin. It cost $18 for one hour, max of 4 people - and the boys lasted at the most only 20 minutes. Here the boys are trying to catch a duck.

Thursday, April 22, 2010

Brian Recovering Nicely

We are so thankful for the many prayers that went up for Brian's recovery. It was a LONG 13-day stay in the two hospitals, but happy that Brian is doing well.

Today is day four since being discharged. We've kept him home just to help him along with his recovery. Brian is pretty much back to normal. His energy level is slowly building up, which is expected when one is in bed for over two weeks. His appetite is also slowly coming back.

He is a bit clingy, as in he always wants to be right beside me - leaning his head up against me, and holding my arm or my hand. He doesn't like it when I go to the school to bring lunch to his brothers because I don't bring him with me. He also was quite upset yesterday when I went out to lunch with some girlfriends. Come to think of it - I was hovering over him 24/7 during his whole stay in the hospital. I always holding his hand, rubbing his hurting tummy, or just holding him close. I suppose that was comforting to him, and he still needs that comfort after all that hospitalization trauma he experienced.

I keep looking at him, because it is so wonderful to see him happy and healthy again. Watching him struggle in the hospital was tough - I felt so helpless at times - then there's the fear that he might relapse. It's reassuring to see him smile and laugh again, and I am truly so thankful it wasn't anything long-term.

Monday, April 19, 2010

Brian's Follow-Up Doctor's Visit

Yesterday, the hospital doctors asked us to follow-up with Brian's pediatrician the following day. Brian's pediatrician said to come in anytime, but that the best times would be either noon or 5 pm, so we wouldn't have to wait long.

Well, we didn't make it in the morning, because I didn't wake up until past noon. I did get up several times though to make sure the boys were fed breakfast and dressed, Brian given his medicine, etc.

By the time we made it to the doctor's office (one hour away), we were the last ones to be seen. Brian's doc was gracious to see us after all the scheduled patients were seen.

Brian looks very healthy clinically. He was given a clean bill of health. We just have to continue with his antibiotics for 12 more days, and then have another follow-up check-up.

Sunday, April 18, 2010

Brian is Discharged!

The doctor came in the morning, and said that she felt Brian was fever-free for a long enough period to be discharged. We could go home today, and continue Brian on his antibiotics orally.

I asked if we could watch Brian through the afternoon, when he tended to spike fevers, then go home. We had been discharged once before, only for Brian's fever to return. She said that was fine.

Brian was glad to have the pulse oximeter removed from his big toe - his foot was free from the wire. Then, when the IV tubing was taken out of his hand, with the hand guard and tape, he was thrilled. He was free to move around without being connected to anything.

After supper, Brian was given his first dose of oral antibiotics (against his will). With about two weeks in the hospital, he has learned to put up a pretty good fight against needles and medicines. Brian ended up gagging on the medicine, then throwing up his dinner along with the whole dose that he just took - this in addition to his loud screaming and crying which added to the choas. He was totally exhausted from the fight he put up, so after he and his bed were cleaned up, he fell asleep.

The doctor felt that since Brian was given the antibiotic by IV in the morning, he would have enough in his body to cover for the dose he threw up. Brian needs to take this oral antibiotic, Cefuroxime, twice a day for the next 14 days. This fifth antibiotic seems to be the one that is working. We were free to go home!

It was past 8pm, and such a happy occassion to actually walk out of that hospital! Kevin and Brian were leading the way, cheering quite loudly. Brian was smiling and holding his balloons (still wearing his hospital socks), with Daddy carrying him. And Beryl and I brought up the rear.

Saturday, April 17, 2010

Great Results from Chest X-ray and Blood Tests

Brian woke up this morning, and the first thing he said was, “I’m hungry.” That was a good beginning to what has been a good day.

Later in the afternoon, the attending doctor came with some great news. The results from last night’s chest x-ray showed no more effusion – the fluid in his lungs was gone. I couldn’t believe it! The doctor was also shocked at the results. We were thinking and preparing for possible surgery to get rid of the fluid in his lungs.

Brian has been fever-free all day today, and even ate and drank a little for breakfast and lunch. His output is normal, although he is still on an IV. Blood test results showed that his white blood cell count is around 9 (normal). A couple of days his WBC soared at 23. The markers showing inflammation (ESR) was 6 (normal), where a couple of days ago it went as high as 59.

The doctors are trying to figure out why Brian was vomiting and spiking a fever yesterday, and the conclusion is that he possibly has caught a virus totally unrelated to the pneumonia. They suctioned his nose for a culture today to see if that was the case. He screamed so much during the suctioning, and was quite angry at me afterwards for allowing them to do that to him.

He has been sleeping all afternoon – over 4 hours now, and still shows no sign of waking. Rest is good – his body is continuing to fight.

The feeling is that we are seeing some light at the end of this long tunnel. I’m still not allowing myself to get overly excited because of all the ups and downs we’ve had recently, but if he continues to be fever-free, we will get to go home soon. Brian and I are ready to say goodbye to this hospital room.

Friday, April 16, 2010

Fever Again

Brian has started a fever again. He hasn’t eaten all day, and has hardly drank anything either. He says his belly hurts. The reason he doesn’t want to eat or drink is because he feels nauseated – part of the adverse effects of the antibiotic. He is back to just laying in bed – not even having the energy to sit up.

He did perk up a bit though, when patient services brought in the Wii station. He was told that he could keep it over the weekend. Then when Kenton came with Kevin and Justin, the three of them played together. It was so cute to watch all three of them play Wii Boxing. Justin was one of the boxers, and Kevin and Brian were the other boxer. Since Brian’s IV is on his left hand, he can’t hold anything with it. Kevin held the nunchuck and helped him box, while Brian boxed with his right hand. In between rounds though, Brian would lay back down on the bed to rest.

Emotionally, Brian’s setback has drained the little bit of reserve that I had. I let myself believe that Brian was on the mend, and that we were going home soon. It’s such a struggle watching your child deal with sickness and pain. I wish there was something I could do to take this pneumonia away from him. I just want him well again so he can be back home with his brothers.

Brian Has a Rough Night/Morning

Around 3:30 in the morning, Brian woke up complaining that his belly hurt. I kept rubbing his stomach, but he continued to complain for the next hour. It didn’t seem like the cramping he had in the past (his belly felt soft), but he kept fussing, sometimes crying. He then needed to pee. After he was finished, I went to wash my hands … and he started throwing up. I noticed some blood in his vomit, and so I pushed the nurse call button several times – nothing. I ran into the hallway to the nurses station, and no one was there. I saw two ladies further down the hall and asked for help (I assumed they were nurses). I went back to Brian and started to clean him up with some wipes. The vomit was all over the front of him, all over his neck, surrounding his neck, on the pillow, and all over the back of his head – it was a mess! Still no one came. I went back into the hall to see if anyone was coming. A nurse came out of one of another patient’s room, and I asked her for help. She said that she would page our nurse for us … back to cleaning Brian up. Finally, our nurse came in. She didn’t do anything! She saw three drops of blood on the pillowcase and asked me what it was. I told her that was the first time I saw it. I told her there was blood in the vomit. She said it probably was from a nosebleed. She then went to the computer and started typing. I got irritated and told her to page the doctor. She spent several minutes on the computer while I cleaned continued to clean up Brian. I then told her that I needed more wipes – she still didn’t move from that computer. I went around her and started using paper towels and wetting them in water to use to clean Brian up. She finally got up and said that she had paged the doctor, and the doctor was in admitting with another patient. She would page the resident doctor.

The nurse then went out of the room (I’m still cleaning up the mess with paper towels), and comes back in a minute or two, with bed sheets. I tell her once again that I needed wipes. She says, “Oh yeah,” and goes back out to get some. I take Brian off the bed and keep wiping him clean, while she proceeds to change the sheets. She throws away the vomit that I had collected in a pink hospital bucket-like thing. I’m really irritated at this time, because I’m thinking that the doctor needs to see the blood in the vomit. She changes the bedsheets, still never checking Brian. She did ask Brian how he was doing once.

Twenty minutes after Brian throws up is the first time she attends to him. She replaces his pulse oximeter (I had pulled off all the leads and pulse ox because they were covered in vomit) and takes his vitals. She goes back to that computer. She then starts to leave and asks if I need anything. I tell her to bring me a small basin just in case Brian throws up again.

Brian does throw up again at 5:30. I don’t even bother to call that nurse, and take care of it myself.

The resident doctor comes in a little before 7 am, and I ask what today’s plan of action is. She said she would return with the rest of the team, and we would discuss it together.

At 9 am, the whole team (doctors, nurses, attending and residents) meets outside Brian’s room. They ask me questions, and I tell everything that happened. The charge nurse apologizes for what happened, says that she will look into it, and speak to the nurse that was on duty. I told her that I didn’t want that nurse to be assigned to Brian again.

At 10 am, the day nurse comes in with another dose of IV antibiotics. She notices that the IV site is leaking and needs to be changed (the reason why Brian was screaming during the previous IV drips). She calls in an IV specialist – thank goodness. (In the ER on Saturday, there was a young nurse who tried starting an IV on Brian. She blew two veins – Brian screaming the whole time - before calling in the head nurse, who had no problem in starting an IV.)

A little after 11 am, the IV specialist comes in. She has a lot of syringes, gauzes, swabs, tapes, and even a special light that shows where bruises are. She is very careful, takes some blood for a blood test, and puts the IV in with no difficulty. She even put a special plastic cover over the IV site. Yes, Brian screamed and cried, but not for too long.

So, we are now waiting to see if Brian throws up again with this next dose of antibiotics. We’re also waiting on the results of the vomit/blood culture, and the blood test.

Thursday, April 15, 2010

Brian Improving

Brian is doing well. He hasn’t had a fever for over 24 hours now. Anything under 101 degrees is not considered a fever. He is still running a low-grade temp, but thankfully the fever has left. Perhaps it is because of the change in antibiotics. We are on our fifth antibiotic, Cefuroxime, which is given every 8 hours.

Brian screams when this medicine is given to him through the IV. Each time, the nurse has to slow the drip rate down, and he seems to tolerate it better.

It is so nice to see his personality showing again. He is smiling and interacting with the nurses and doctors now. Patient services brought in a Wii game station, and he is having a blast. There are 20+ games to choose from, which are all on one disc. He just scrolls through the different games available, and plays away.

I’m so thankful that Brian is finally improving, though I’m a little scared to raise my hopes that he is starting to fully recover. We went through this last week at Montgomery General Hospital -- where he improved so much, they discharged him. The doctor told me today that if Brian continues to stay fever-free, they may discharge him as early as Saturday, but more likely Sunday. They want to see him fever-free for four days.

Finally, we can see a light at the end of this tunnel … so happy and so thankful!

Tuesday, April 13, 2010

Brian Gets a Private Room

After waiting all day to be transferred (we were told there weren’t any empty rooms), Brian now has a private room, Room E744 – the transfer took place a little after 7 pm.

The room is large and in a new part of the hospital, only 6 months old. It is so nice not to have to share the room with another patient and his family. It is especially nice to have our own bathroom. In short-stay, we shared the bathroom with the other patient and family in the room, in addition to the two patients and their families in the adjoining room. There wasn’t a lock on either of the bathroom doors, so everyone had to knock before entering.

We now have a sofa, a reclining chair, a small round table, three chairs, a small refrigerator, and of course space to walk around. The bathroom is also quite large – it was just so nice to finally take a shower after being in short-stay since Saturday.

Kevin and Justin say that Brian’s room is cool looking (there is a bit of color, and stars on the floor and door) and they like the fact that there is room to move around, places for everyone to sit, and even a table where they can eat.

Monday, April 12, 2010

Still in Short-Stay Unit at Children's Hospital

After over two days here at Children’s, I don’t see much improvement in Brian’s condition. Since we are in short-stay, Brian has a different doctor every 12 hours. It is a plus in that every doctor is senior level here – no interns, residents, fellows, etc. But, every doctor has their own idea of what needs to be done, and no one is following through with a treatment plan. We’re trying this, then we’re trying that, and in between, there is a lot of indecision. I understand that they don’t want to rush into anything, but each doctor seems to be waiting for the next doctor to make their suggestion. All I know is that we’re doing test after test – x-rays, sonograms, a CT, blood cultures and many other blood tests, stool, urine, etc. – and still no solid answers.

The doctor this evening took the time to speak with me about what was going on, what tests had been done and why, and just listened. It was comforting to have a doctor actually take the time to listen and be compassionate. He said that he would transfer Brian to a medical floor so that Brian would get consistent care by one doctor. He would try and get the transfer done by morning. Apparently, two more specialists will look at Brian tomorrow – one from immunology and one from surgery.

Saturday, April 10, 2010

Brian Admitted to Children's Hospital

Brian had severe stomach cramping throughout the night. I had given him two doses of the oral Clindamycin since returning home, and believe that this is what is causing his cramps. I called his pediatrician, telling him that I couldn’t continue giving Brian this medicine. His pediatrician agreed, and we decided to bring Brian to Children’s Hospital for follow-up.

After waiting in the Emergency Room for over 5 hours, where Brian was given motrin and an IV - Brian was admitted to the short-stay unit. I told the doctors over and over that I thought that his cramping was caused by his medicine Clindamycin.

Imagine my rage when I found out that Brian had been given another dose of Clindamycin in the ER. I thought the IV was given to keep him from getting dehydrated. The only bag hanging on the IV pole was saline solution. I let them know I was very upset, and the doctor on call in short-stay kept apologizing. I know it wasn’t her fault, but I couldn’t believe that the doctor(s) in the ER still gave this medicine to him. The explanation given to me was that treating Brian’s pneumonia was the primary concern. They could manage the cramping with pain medication if needed.

Friday, April 9, 2010

Home Sweet Home

Brian woke up without a fever this morning, so the doctors decided to give him another day’s worth of antibiotics by IV, then discharge him. We left the hospital around 6 pm. Kenton was able to come home last night, so he and the kids were at the hospital with Brian and I for a couple of hours after school got out.

I was glad to be able to take Brian home, but also wondered if he was ready. He had just had that bout of stomach cramping yesterday, and felt warm (low-grade fever to me). But, we were just so happy to go back home.

We were given a prescription to continue the Clindamycin orally, which Kenton got filled when we returned home. The price for this medicine was $250.47 – what?! Thank goodness for our insurance prescription plan, which knocked the price down to $83 and change - still outrageously expensive.

It has been a little over a week since Brian, Kenton, and I have been home together. It is so nice to be back home!

Thursday, April 8, 2010

Stomach Cramps and Morphine

Brian has been given the antibiotic, Clindamycin, through IVs since yesterday morning. He has started having severe stomach cramps, always saying, “My belly hurts.” Usually, I rub and press on his stomach for about 5 minutes, and the pain gradually goes away.

This afternoon, around 5 pm, Brian started screaming in pain again. He kept yelling, “My belly, oh my belly.” I kept rubbing his stomach, but the cramping wouldn't stop. After over ten minutes of his screaming in pain, he was given 1 mg of Morphine through his IV. I wasn't exactly on board with Brian being given morphine, but anything that would take away his excruciating pain was alright with me.

The doctor said that Brian would sleep for a long while. It took almost 10 minutes for Brian to fall asleep, but he slept for only about 5 minutes. He then woke up and was back to his normal, smiling self again.

Tuesday, April 6, 2010

Brian Admitted to Montgomery General Hospital

Kenton left for a business trip yesterday, and I decided to stay in Tappahannock with the boys to keep Mom company, and to continue with the outpatient care here for Brian.

This morning, Brian woke up with a bad rash on his joints – the worst being around his knees. His knees are so puffy that they look like little mountains covered with ice caps. I took him to the urgent care as soon as it opened, and the doctor immediately stopped both antibiotics. He suggested that we take him to a hospital, preferably one with a pediatric unit, and have him cared for there.

We decided to drive back to Maryland to have Brian hospitalized. Beryl is going to help take care of Kevin and Justin, while I stayed with Brian in the hospital.

Brian is now a patient at Montgomery General Hospital. He apparently experienced what is called ‘serum sickness,’ an allergic reaction to an antibiotic.

Sunday, April 4, 2010

Easter Egg Hunt / Brian to Urgent Care

Today started with an egg hunt for the Roda clan kids in the backyard of my parents house. My cousins – Manang Beverly, Manong Greg, and Manang Betsy – bought over 400 eggs, filled them with candies, and hid them. They then gave a bag to each kid with the kid's name written on it for them to fill with the eggs they found. The kids were so excited, and had such fun finding the eggs. It was so nice to see the older kids helping the younger ones. Kevin and Justin had a blast running around finding eggs, that they filled up more than two bags each. Kevin ended up giving all his eggs away to the younger kids.

Brian has had a fever for three days now, and today was no different. He didn’t even have the energy to fill up his bag with eggs. He found a few eggs, then went back into the house through the kitchen, and lay down on the kitchen floor right by the door. We knew that it was time to bring him to a doctor.

We took him to the urgent care in town, where after x-rays and blood work, he was diagnosed with pneumonia. He will be treated with antibiotics as an outpatient. The doctors gave him a 24-hour antibiotic, Rocephin, by injection on both legs. They also gave us a prescription for Azithromycin for Brian to take orally.